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1. Anthropological investigations
For the investigation of anthropological characteristics of the populations leaving in Republic of Macedonia and for Macedonians leaving in other countries it is necessary to fill Written consent [*.doc] [*.pdf] in which personal data, data for their parents, and data of parent's parents (two generations backward) are defined. Ten mL blood EDTA(K3) is taken and sent by courier to the Macedonian Human DNA Bank or is visiting the Foundation Macedonian Donor Registry (MKDR), Skopje, where the blood is taken.
Macedonian Human DNA Bank have special interest for anthropological investigation for:
Macedonians born from two parents and parent's parents in Republic of Macedonia, Greek Macedonia, Bulgarian Macedonia, Albania, and Kosovo (independent of the present living place).
Macedonians displaced from Greek Macedonia after the First World War (bezhanci).
Macedonians displaced from Greek Macedonia after the Civil War in Greece.
Macedonians Muslims from all parts of the World.
Goran's from all parts of the World.
Albanians, Turks, Roma, Vlachs, Serbs, and others born in Republic of Macedonia.
2. Application for Project
Each medical doctor can apply for project in Macedonian Human DNA Bank with intention to deposit DNA samples for certain defined disease and to arrange genetic tests for the patients. It is necessary to fill Application for Project in Macedonian Human DNA Bank [*.doc] [*.pdf].
3. Taking samples for genetic testing
Medical doctors are obliged to give the text Informed Consent for Diagnostic Testing to each of the patient to take time for reading and independent informed choice. If the patient decide to be included in genetic testing, he and his medical doctor are signing Informed Consent for Genetic Testing [*.doc] [*.pdf] and attend at the Foundation Macedonian Donor Registry (MKDR) for taking blood for analysis, or the blood sample can be taken in other health institution and sent to MKDR.
4. Materials form hDNAMKD
Each scientist from the Republic of Macedonia or from other country has a right to order materials from Macedonian Human DNA Bank for scientific purposes after submission of special order forms [*.doc] [*.pdf].
5. Request for sample destruction
Each person, patient or medical doctor (depositor) has a right to request destruction of all DNA samples deposited in Macedonian Human DNA Bank, if submit Request for Sample Destruction [*.doc] [*.pdf].
6. Ownership of the sample
owner of the anthropology data is Foundation Macedonian Donor Registry (MKDR), Skopje, Republic of Macedonia. Banked DNA from the
patients is property of the depositors (MKDR and MD who sent the material for
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Update: October, 2013
Author: Mirko Spiroski, MD, PhD
Hosted by: MCMS, Skopje